Hosted by Sarita Edwards, the Being Rare Podcast is an online community of rare disease conversations. We’ll have intimate and sometimes difficult conversations about issues in the rare disease space. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Being Rare is not just a podcast; it’s a talk radio style platform that aims to make the extraordinary world of rare diseases accessible, relatable, and impactful. Stay connected - email us podcast@theewefoundation.org. Follow us on social media @beingrarepodcast! Support this podcast: https://podcasters.spotify.com/pod/show/beingrare/support
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