Being Rare is an online resource hub and community conversations platform. We'll have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, and special health needs. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Hosted by Sarita Edwards, a world's top patient expert, award winning advocate, global speaker, and CEO. Email us podcast@theewefoundation.org. Follow us on social media! IG: @beingrarepodcast FB: @beingrarepodcast Other ways to connect: linktr.ee/ewefoundation Support this podcast: https://anchor.fm/beingrare/support

More ways to listen